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Mikey stone began experiencing tightness in his left foot in 2022 Lou gehrig's disease, also known as amyotrophic lateral sclerosis (als), is a rare disease that affects mikey's motor neurons, which are the nerves that regulate voluntary muscle movement. Years later, he was diagnosed with als.
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Learn about mikey stone's journey with als I'm living with als, epilepsy, and a rare genetic mutation, and i've made it my mission to turn the chaos of life into something meaningful—through honest content, storytelling, and moments shared with you In february 2025, mikey's physician referred him to an als specialist and ordered an emg test
Instead of ruling out als, the visit confirmed the diagnosis that changed his life
I don't think i had the average response, mikey says of receiving his diagnosis After years of medical uncertainty, he felt weirdly relieved to. Stone began noticing a subtle tightness in his left foot in the summer of 2022, which gradually worsened over time Despite seeking medical help, his symptoms.
Tiktok video from mikey stone (@rarewithmikey) Sharing my als diagnosis experience and the importance of support Join me on this journey of understanding and management For this episode, i talked with mikey stone, a social media advocate for als awareness and disabilities
Mikey shares his journey from a casual social media user to a.
Hi, i'm mikey — host of the mikey's house podcast, where i share my journey living with als, epilepsy, and a rare genetic mutation, while creating a safe and meaningful space for people with chronic, rare, and undiagnosed illnesses to share their stories too. Get more from mikey stone on patreon welcome, and thank you so much for being here I'm mikey, and i'm so grateful you've decided to join this space
